International Painful Bladder Foundation (IBPF) • the IPBF is a non-profit, voluntary, umbrella organization, active worldwide, that promotes knowledge and awareness of interstitial cystitis (also known as painful bladder syndrome, bladder pain syndrome and hypersensitive bladder syndrome) and associated disorders among patients, patient support groups, health professionals and the general public
• the IPBF promotes the interests of IC patients around the globe
University of Pittsburg mediasite • with 5 speakers on Research Directions in IC, Pain Management, Physical Therapy, Symptom Management and the ICA with an overview of IC and the Impact on the patient
Urological Pelvic Pain Collaborative Research Network (UPPCRN) • the UPPCRN represents the overarching organization for collaborative research in chronic prostatitis, chronic pelvic pain syndrome, and interstitial cystitis; it serves as the official NIDDK Working Group on chronic pelvic pain of urological origin, to facilitate interaction of study groups and investigators, both nationally and internationally, to advance the understanding, diagnosis, and treatment of these diseases
Urology Health • a website of the American Urological Association with a lot of information on urological diseases; the link takes you directly to the section on IC.